Tag Archives: Polio

Courage at Twilight: Broken

The dishwasher door springs both broke and the heavy door slammed down if not snapped securely shut, and with the anchor broken off the washer tipped forward and the dish-laden trays rolled out with a jarring clang. Brian helped me pull the machine out and install the new springs and pulley cords.  Tracy helped fashion homemade counter-anchors from common elbow brackets—and they worked!  On advice from the Bosch store, I had bought an expensive new dishwasher base, but was relieved to find the old base had a built-in slot for the new springs, and I was spared the chore of disassembling the washer and the exasperation of not being able to see in my mind how to reassemble the parts back into the whole (an annoying life-long intellectual weakness).  As it was, You Tube was indispensable, even to replace the springs.  I felt thrilled and relieved we had succeeded in fixing the dishwasher, and thanked my Lord the repair was simpler than anticipated.  I had not realized the stress and pressure I was putting on myself to get the machine fixed.  But then Brian found a pool of water under the kitchen sink, dripping from a filter cartridge seal, dripping down a hole into the cavity above the finished basement, and we could not find the filter wrench.  The bowl I placed under the filter filled overnight and spilled again into the dark void in the floor.  Following with my eyes the various colored hoses (blue, yellow, red, black, and white), I discerned how to turn off the water to the filter and close the bladder tank valve—and the drip stopped, just in time to leave for church.  Staggering with his cane, Dad wondered if today would be his last day walking to our habitual pew near the front.  “My legs just won’t work.  I’m getting worse.”  Post-polio sets in like a heavy dense discouraging fog that never blows or burns off but grows only heavier and denser and more oppressive, and one’s feet become increasingly thick and leaden and mired in an energy-sapping sink.  He made it to and from church, today, with help under each arm.  Terry asked me how Dad was doing, not needing my response to see the truth, and knowing my unspoken thoughts as he offered, “I have a good wheelchair.  I’ll dust it off and bring it over.”  I thanked him, and suggested I would come get it so I could sneak it into the house unseen.  Dad thinks he likely will skip the walker and go straight from the cane to the wheelchair.  After church and rice casserole and a nap, Mom showed me how the DVD player would not respond to the remote or to direct button pushing—it had swallowed the DVD and refused to give it back.  She pried the tray open with a serrated Cutco knife, and the tray stuck stubbornly out, appearing much like a dead animal with its tongue lolling.  Remembering the no-longer-used basement entertainment equipment, I brought up the old combination VCR/DVD player, made before HDMI technology, and plugged the red, white, and yellow audio/video cords into the TV.  With new batteries in the remote, the old machine came to life, functioning correctly and obeying Mom’s commanding button bushes.  She was so pleased she decided the moment was right for an episode of NCIS, which she learned was also a favorite of Gabe’s other great-grandparents, the Scotts.  The word “surprised” describes my reaction to having fixed three broken appliance problems in two days—generally I am not very handy.  I only wish I could fix the only real problem of these four: Dad’s crumbling legs and feet and disintegrating mobility.  The best I may be able to do is to push his chair down the aisle at church to sit near our customary pew, on the front row, where space was left for a wheelchair.

Courage at Twilight: A Heroic Effort on a Sunday Morning

Arriving home from choir practice, I found Dad sitting on the edge of his bed in his undergarments.  I needed to leave immediately to get Mom to church on time, and I could not come back to get him right away because the choir was performing, and I was singing in the choir.  “You go ahead and take Mom to church,” Dad read my mind.  He seemed very tired, and without Mom to help him with his socks, and exhausted from yesterday’s long funeral, this Sunday seemed like a good day for him to rest.  Mom and I had been sitting in our customary pew for only ten minutes when Dad appeared in the aisle beside us, hunched over his cane.  Surprise understates my reaction—I was shocked.  Mom and I leapt up to allow him into the pew (we could never have climbed over him to join the choir), where he huffed and heaved to regain his breath.  He had walked to church with his cane in one hand and an umbrella in the other.  “I tried 100 times to get my socks on,” he whispered, a bit too loud, as the young men distributed the emblems of our Lord’s body and blood.  “I was collapsing—I wasn’t going to make it.”  That is when a teenager in white shirt and tie jumped from his car and grabbed Dad, walking with him to the church doors.  “You don’t really need my help,” the boy reassured as Dad leaned on him hard, “but I’ll just stay with you until we get into the church.”  The boy helped him past the doors and down the chapel aisle to our bench.  “I must have tried 20 times to get my socks over all of my toes,” he bemoaned.  “My knees are still hurting.”  After his breathing calmed, I reached over Mom and patted him on the knee, giving him a thumbs up sign.  He smiled and brightened at my recognition of his heroism.  “After you left, Rog, I realized how much I wanted to be in church.”  Yes, I say heroism.  Walking 50 feet to the mailbox is a major effort, taxing him for hours, and he had just walked 20 times that distance.  “I only have this much strength in a day,” he gestured a distance of two feet, “and I have totally used it all up.”  How many times have I decided ambivalently that I was too tired or discouraged to go to church?  And this old man, nearly lame from post-Polio—this old man, with a big heart full of love for his Savior and humanity—he wanted very badly to go to church and worship, and he defied his circumstance and went.

 

(Pictured above: a fairly typical church meetinghouse of the Church of Jesus Christ of Latter-day Saints.  Image used under the Fair Use Doctrine.)

Courage at Twilight: To the Edge

Mayo Clinic

Dad contracted polio in the early 1940s—so we believe—a mild case.  His left leg developed with smaller muscles and no ligament support in the arch of the foot.  Without thick homemade orthotics, he walks with his ankle bone on the floor.  Ouch.  Still, with resolve and grit, he compensated and persevered, taking up jogging as a health-hobby.  He typically ran seven miles during his lunch break at work, and often 20 miles on Saturdays, for two decades.  He clocked 13 marathons, and one 50-mile ultra-marathon (“I never got tired!”).  For years, his resting heart rate was about 35 bpm.  In his eighth decade of life, however, even walking has become nearly impossible.  And not just due to the weak leg and foot, or from age, but from post-polio syndrome.  No matter his exercise level, he cannot seem to strengthen, but continues to deteriorate.  The Mayo Clinic says post-polio syndrome is characterized by progressive muscle and joint weakness and pain (check), general fatigue and exhaustion with minimal activity (check), and muscle atrophy (check).  I have to remember, as we go to the gym, to walk the fine line between strengthening and debilitation, between rejuvenation and exhaustion.  The last time we left the gym, he clung to my arm and worried, “I don’t know if I can make it to the car, Rog.”  But Dad has such determination (“I am a fighter!”), and together we understand his desire to push himself right to the edge, to do all he can do, without tumbling over the cliff.

(This blog, author, and essay have no relationship with, and do not represent the views of, the Mayo Clinic.)

Courage at Twilight: Visit to the Podiatrist

Dad stubbed his fourth toe against the couch at three in the morning.  The toe pained him badly and turned black and purple.  “I think I’ve broken my toe,” he announced to me the following day.  Poor guy, I thought, there’s always one more thing.  Fortunately, his regularly-scheduled podiatry appointment was only three days away.  The podiatrist was so considerate as he clipped and ground, bandaged and lotioned, stockinged and shod.  Childhood polio and 20 years of marathon running have taken their toll, eliminating ligaments and mashing bones.  Was all that jogging and marathoning worth it?  As a teenager, I saw Dad taking his pulse one evening.  “Twenty-eight!” he cheered.  His resting heart rate was about 30 beats per minute for two decades.  I wondered how many heartbeats his exercise had saved him over those years, and if he were getting good use of them now at 85.  His own father died of a heart attack at 59, before I was born.  One Saturday morning in New Jersey, Dad did not come home from his 20-mile training run.  I knew roughly his route, and Mom sent me in the station wagon to find him.  That long run on that hot humid day had been too much, and I found him walking on Cranberry Road miles from home.  I gave him a thermos of cool water, and we stopped at Claire’s market for fresh sweet corn on the cob, Jersey tomatoes, juicy peaches, and the most delicious crenshaw.