Tag Archives: Dying

Courage at Twilight: Almost Comical

Jessica, the on-call hospice nurse, arrived just in time to see Dad lurch into an episode of unendurable chest and rib pain. His vitals were good, she said, suggesting the episode was not a heart attack, and authorizing me to give four 0.25 ml morphine syringes, plus a 0.5 lorazepam syringe (“they work better together”).  After an hour, the pain suddenly let up, and he settled into a snoring sleep.  He stirred at intervals, waking slightly, but not fully, mumbling gibberish, making incomprehensible nonsensical conversation.  At bedtime, he could not sit up, let alone stand up, and I could see clearly the impossibility of getting him to bed.  But I needed to get him to bed, to confine the mess, the increase his comfort, and mostly because I suspected that once in bed he might never leave bed again alive, and that if I did not get him into bed this night I would not be able to thereafter because of his utter weakness and my insufficient strength.  He struggled to lean forward, but explained with hand motions the mechanics of how he would simply stand up and turn clockwise to sit on the walker seat, his voice strangely thick and dull and slurred, his self-perception skewed and delusional.  How would I get him up and out of his recliner and convey him to bed? I wondered.  I could not fathom how.  Following our routine–we had to try–I hooked an elbow under his good right shoulder (the left side continued to pain him terribly) and carefully lifted, while mom lifted with her hands under his butt—and all we succeeded in doing was scooting him dangerously close to the edge of the seat, within an inch of sliding irretrievably to the floor.  An idea came, and I hurried to executed it.  Phase 1 involved leaning his torso back, lifting his legs, jamming the walker seat against the recliner seat, holding the walker in place with my foot, and dangling his legs across the walker seat.  With a broad, two-handled sling, I sat him up and shimmied him from the chair and onto the walker seat, bumping his butt over a gap.  The maneuver worked, and he sat nicely on the walker seat.  As I held him upright with the sling, Mom and I managed to roll the walker backwards to the hospital bed, which I lowered as far as it would go.  Phase 2 involved leaning his torso back onto the bed, with the sling behind his back and under his arms.  Mom lifted his feet clear of the walker, and I stood on top of the bed leaning over him, my feet sinking deeply into the mattress.  I heaved with my legs and arms—trying not to strain my back—to slide him in six-inch intervals onto the bed, but perpendicular to the bed, then used the same maneuver to turn him parallel and to slide his head toward the headboard.  With each heave, his head slid backward between my feet as I stood over him on the bed.  At any point, this slapstick performance could have gone terribly wrong, with Dad crashing to the floor, with my desiccated spinal discs shattering, with me tumbling off the bed, with only half of his body in bed and half out….  But for the tragedy of Dad’s situation, and maybe in spite of it, any observer would have laughed hysterically at our antics.  Somehow, with just the right forces and angles and frictions and strengths and moves, we succeeded.  I would not want to have to do it again, and now that Dad was correctly installed in his bed, I likely would never have to.  He had cried out in pain throughout, and he eagerly accepted the morphine he had rejected for the previous 13 months, and quickly settled into sleep, a sleep from which he never fully awoke.

(Photo copywrite by Caleb Baker.)

Courage at Twilight: Unspoken Apology

Before I understood Dad’s pain, he shouted at me as I lifted gently under his left arm to help him stand and turn for bed, and I shouted back at him to not shout at me, making sure to shout louder than he. Lying panting in his bed, he explained the horrible pain he was having in his chest.  Understanding his pain helped me find more compassion and patience, helped reduce my resentment, helped me speak softly and forgivingly, and I thought in the night of the apology I would offer him the next morning.  I’m sorry I shouted at you, Dad.  Can explain something to you?  Just let me get through it, and then you can respond.  I have always felt afraid of you and intimidated by you.  You were always so smart and so strong and so successful, a superstar to so many, and I wanted to be all you are but knew I would never be.  I have always wanted to make you proud, but you never told me you were proud of me.  I have always wanted your love, but you never told me you loved me.  I always felt afraid of your disapproval and disappointment.  And so, I feel destroyed and annihilated when you shout at me or become angry or disappointed with me.  And now, at age 60, I shout back or become defensive, only to stay alive.  Always in my life I have shrunk to be as small as possible, I have shrunk into shame, I have sunk into depression, for I am a man who has depression.  But, I don’t want to die, Dad, and to not die when you are disgusted with me or disappointed with me or angry with me, I fought back.  That’s what is happening.  I’m trying to survive, to stay alive, to not die.  But I can see that you weren’t angry with me last night; you were in severe physical pain, and so I apologize to you for shouting back at you when you shouted at me, because you really weren’t shouting, you were just crying out in pain.  I’m sorry.  But in the morning, I found him too feeble and in pain and ashen-faced and miserable and weakened, and could not bring myself to add to his suffocating burdens.  My apology may have brought understanding, but would have added to his heaviness and suffering.  Instead, I listened to his troubles and called for the hospice nurse to come, on a Sunday, and administered the morphine, and did what I could to safeguard his comfort.

(Pictured: boot hill grave in Peoche NV, the small mining town of my father Nelson’s grandfather Nelson.)

Courage at Twilight: Will You Stand By Me?

I am the shy quiet guy that lives with his parents, almost 60 years old, who they see pushing Dad’s wheelchair very slowly, so Mom can keep up, down the aisle to the front church pew, where a space is reserved for a wheelchair, where Dad has a better chance of hearing the worship meeting speakers, in the front where our family has sat in church for decades: in the front, where Dad, sitting on the stand those many years, presiding and exhorting and teaching, could keep an eye on his six children, not that we caused any trouble, and where he could be as close as possible to his family while carrying out his lay clergy duties. I am slowly learning their names, making a few acquaintanceships crawling toward friendship.  But today Dad was too weak to attend church meetings, and I had my granddaughter Lila with me, and we walked hand in hand down the aisle where Mom sat alone on the front church pew, and I could feel the eyes on me, friendly and interested and astonished eyes, and could hear their thoughts: Oh, he has a story!  And they wondered what my story could be as they saw my oldest son and his good wife and the little black-haired baby, my newest grandchild, and Lila my three-year-old friend, all sitting together in the front.  I share my desserts with church families now and then, always friendly cheerful encounters after which, as I am walking away, I hear them thinking to themselves: I wonder what his story is?  And they wonder if mine is a strange tragic story, as they munch tentatively, at first, and then with gusto, on my latest baking attempts, tonight’s being an enriched German holiday “Stollen” bread filled with dried fruits and sweet almond paste.  I baked the Stollen after cleaning up our Sunday dinner dishes, when I wanted to get off my aching feet but wanted more to make something pretty and interesting and sweet.  Dad asked if he could have a slice, which of course I gave him, in spite of the spiteful diabetes that is wrecking him, because he will be 87 in two weeks, and it was a thin slice after all, and let him live a little for heaven’s sake, and I said “no” to his importuning for seconds.  And he asked me, “Rog, will you stand by me while I try to stand up?” but I heard, Rog, will you stand by me as I am wasting away, in my pains, as I am dying?  Will you stand by me to the end?  Yes, Dad, I am here, and am not going anywhere.

(Pictured above and below: my first attempt at Stollen, an 18-inch loaf–delicious.)