A month after my involuntary retirement, and the illness that followed, I finally found the mental energy to map out a new routine for my daily life. My routine involved time for reading scripture, exercising, new writing projects, painting lessons, low-bono work with an immigration non-profit, and yard and house projects. I also built in time to take Mom for her necessary errands, like the post office or the pharmacy. Since Mom is so routine-bound in her dementia, Jeanette suggested Mom would benefit greatly from seeing my schedule, knowing my routine, and knowing that she was a part of it. I printed the schedule, and Mom taped it to the lamp next to her recliner, where she could always see it. I knew a routine would need to be flexible. Without flexibility, the routine would cease to be the servant and become the master. Instead of the routine serving my purpose, I could become a slave to the routine. That flexibility proved necessary as I succumbed to sinus and bronchial infections that laid me flat for much of eight weeks and dragged me through two ten-day microbiome-depleting rounds of antibiotics. The illness destroyed my routine. But every day near 2:00 p.m., Mom asked—according to my routine—to be taken to Help U Mail or Walgreen’s or out for a drive: Ahhh! Just look at the beautiful blue sky! I began to roil with increasing resentment, and biting my tongue and clenching my teeth, I evenly uttered, “Mom, I don’t think you have a sense of reality right now about what I can do. I had just enough strength to watch Jeopardy with you for half-an-hour. I’m not up to an outing.” After more than two months, I am nearly recovered, but my routine remains in a shambles. Returning from an appointment at 4:00 p.m., I asked Mom how her afternoon had gone. “Quiet,” she answered, and continued under her breath: “I guess I’m stuck in the house today.” “Stuck?” I answered. She thinks she’s stuck in her recliner, I thought. She thinks I’m responsible for her getting unstuck. “You’re not stuck,” I challenged. “You can get up from your recliner and sit in a chair on the front porch and look at the blue sky, the clouds, the endless airplanes, the cars driving by. You can sit on the back porch and look the mountains with their maples turning red and the dustings of snow on the peaks. You can use your walker on the sidewalk for a quick walk.” And then I saw it. When I began my new retirement routine, I had made time for her in my daily schedule. My My schedule. She had taped my schedule to her lamp. And with that bit of adhesive tape, I became part of her routine and her schedule. I had been sucked in even further by her consuming dementia. I was now another symptom of her slavery to dementia routines. The next morning, I pulled the paper from her lamp and crumpled it into the trash.
The Dementia Dossier: Rigid Dementia Routines
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